Welcome to Nathan's Cancer Journey

This blog is a reposting of Nathan's Caringbridge page which we updated throughout his battle with Neuroblastoma.

Nathan was born on June 16, 2000, diagnosed with Stage IV Neuroblastoma on April 1, 2003 and died on July 29, 2007.

I have posted the journal here to make it easier to look up by date and also to be able to easily add pictures to the journal entries.

Some of the pictures go along with the text, but many of the pictures you will see were pictures taken on the same date the journal was added, even if the pictures have nothing to do with the text. In the future I may add additional journal entries to go along with pictures to add more explanation/memories.

I am just getting started posting the years of entries and so this will be incomplete for some time. I hope to eventually also post the guestbook entries by date as a comment on the post.

Tuesday, September 28, 2004

Tuesday, September 28, 2004 1:06 PM CDT

Hello -

We have some more scan results. The bone marrows are clean. The MIBG is complicated but I will try to explain. The previous MIBG scans were done in New York and were not available for comparison. These previous scans have always shown some uptake near the right kidney which the doctors in New York do not feel is disease. So - until the doctors in New York can compare the two we cannot be assured nothing is going on but since the CAT scan was clean it is unlikely there is anything there.

Luke and I knew that by getting the scans done here we would likely run into some uncertainty in interpreting. We decided it was worth it. Had we done them in New York we probably wouldn't even have any questions about it. As it is it leaves me a little concerned but I am feeling confidant that this is the same area described previously and does not represent cancer.

We are still waiting for the Urine test results.

I hope to be in contact with the doctor in New York in the near future and have him explain the MIBG.




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