Welcome to Nathan's Cancer Journey

This blog is a reposting of Nathan's Caringbridge page which we updated throughout his battle with Neuroblastoma.

Nathan was born on June 16, 2000, diagnosed with Stage IV Neuroblastoma on April 1, 2003 and died on July 29, 2007.

I have posted the journal here to make it easier to look up by date and also to be able to easily add pictures to the journal entries.

Some of the pictures go along with the text, but many of the pictures you will see were pictures taken on the same date the journal was added, even if the pictures have nothing to do with the text. In the future I may add additional journal entries to go along with pictures to add more explanation/memories.

I am just getting started posting the years of entries and so this will be incomplete for some time. I hope to eventually also post the guestbook entries by date as a comment on the post.

Wednesday, September 1, 2004

Wednesday, September 1, 2004 8:09 AM CDT

Good morning!

It is September 1 today and so the first thing I want to talk about is Lunch for Life. Please see the text above for details but I will explain why this is so important. If you recall this is something started last year and is now being done in a greater scale this year. Lunch for Life funds Neuroblastoma research. When we were at the Neuroblastoma Conference we were given an example of how important private funds for reasearch are. One of the key components to Nathan's treatment was taking Accutane in high doses. The Doctor who did the study on Accutane told us it took him several years to be able to do the study. He could not get any funds for his reasearch until he finally got a grant from a private foundation. Accutane increased survival rates by 10� There is so much the researches do not know about Neuroblastoma. The more research that can be done, the sooner a more effective treatment or even a cure can be found.

Donations can be made on the website and can be made in Nathan's name. We thank you in advance!

Now on to what is going on around here. Nathan thoroughly enjoyed day 2 of preschool. The kids are loving their bunk beds and Julia is doing great in a "big girl bed". They spent yesterday at the sitters and I finished switching all their things around between the bedrooms and took down Julia's crib. Today we will be doing mundane stuff and I am very happy about that!

Now that we are home for 8 weeks with minimal medical stuff going on I am really hoping to catch up with a lot of my friends. For some of you it has been quite a while and I am looking forward to reconnecting!

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