Welcome to Nathan's Cancer Journey

This blog is a reposting of Nathan's Caringbridge page which we updated throughout his battle with Neuroblastoma.

Nathan was born on June 16, 2000, diagnosed with Stage IV Neuroblastoma on April 1, 2003 and died on July 29, 2007.

I have posted the journal here to make it easier to look up by date and also to be able to easily add pictures to the journal entries.

Some of the pictures go along with the text, but many of the pictures you will see were pictures taken on the same date the journal was added, even if the pictures have nothing to do with the text. In the future I may add additional journal entries to go along with pictures to add more explanation/memories.

I am just getting started posting the years of entries and so this will be incomplete for some time. I hope to eventually also post the guestbook entries by date as a comment on the post.

Saturday, September 18, 2004

Saturday, September 18, 2004 6:59 PM CDT

Hello,

Not too much has been going on. There is still no word about when Nathan's bone marrow biopsy or other tests are scheduled. I hope to hear something on Monday. As of today there are no more banans in the house so I will begin to withhold chocolate and vanilla as well in preparation for his urine test. This is the test that shows elevated numbers if Neuroblastoma is present. Hopefully I will collect it in the next week.

Luke came home today. He was supposed to get back last night but after sitting on the plane at the gate for 3 hours his flight was cancelled due to bad weather. He then spend 2 and a half more hours on a shuttle to another airport and then waited around for a shuttle to the hotel. He is wiped out!

The kids have been pretty emotional the last few days and there have been lots of fits. We have been running some errands and playing outside. It has been in the mid-80's which is very warm for this time of year.

Thanks to everyone who responded about Nathan's behavior. Your notes and e-mail reassured me that most likely he is just being a 4 year old...albeit one who has some heavy things to deal with.

On Monday, Luke and I will celebrate our 7th anniversary. Last year Nathan was in transplant for our anniversary. We have not big plans, Luke is exhausted and has a work deadline coming up so we may celebrate it a little late.

I plan to go back to choir this week and see if I can join. I am hoping it works out.

Until next time...

 
Nathan's preschool Picture

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