Hello,
Just when I was talking about how nice the weather has been it got hot again. I suppose it is the last gasp of summer. We spent a warm hour or so outside of Nathan's clinic today. An organization just opened a playroom for immune-compromized kids and siblings or kids of parents who are immune-compromized. There is a separate area for the kids undergoing treatment. Nathan has played in there a few times and they will actually have volunteers watch siblings while the other child has an appointment. It is a really wonderful idea. There are some pictures of it in our family page for August. They are the camper pictures. Anyway - they had an opening party with food, inflatable slide and jump room and some entertainment.
We spent this morning cleaning out or garage which was gratifying. I have been tackling all the little around the house projects that have been bothering me for the last year. It is very good for me mentally.
Yesterday the kids wanted to hang around home and play so I did some more cleaning and organizing and then we ran errands in the afternoon. Last night I went on a girls night out whith some other moms and enjoyed myself.
On the medical front, Nathan's immune tests came back and he is off of his related medication now. He is also ready to start reimmunization. His local doctor will be getting the information from New York about that.
We have decided for sure to do the bone marrows here and need to decide if we should do all the scans here. We are mulling it over and will decide soon. Our decision hinges on some seemingly trivial things. One is the type of medicine he takes to protect his thyroid. Awful tasting stuff but the stuff they give in New York is different and is ALOT less nasty and since it is several doses we want to do that kind. Also, there needs to be a TV and VCR in the MIBG scan room. I am not sure if they can provide that here or not. Like I said, sounds trivial, but means a lot to Nathan.
Tomorrow Luke leaves for a weeklong trip to his office in Washington DC. It is the first long trip he has taken since diagnosis. It is certainly time for him to get back to normal working conditions, but this first time will be a little hard. At least I will have my Tuesday off. I will have to use it well this week. I also get Thursday morning because I am going to the doctor. Those moms of you out there know that even going to the doctor is a treat when it is without kids!
Hope you all have a good week!
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