Welcome to Nathan's Cancer Journey

This blog is a reposting of Nathan's Caringbridge page which we updated throughout his battle with Neuroblastoma.

Nathan was born on June 16, 2000, diagnosed with Stage IV Neuroblastoma on April 1, 2003 and died on July 29, 2007.

I have posted the journal here to make it easier to look up by date and also to be able to easily add pictures to the journal entries.

Some of the pictures go along with the text, but many of the pictures you will see were pictures taken on the same date the journal was added, even if the pictures have nothing to do with the text. In the future I may add additional journal entries to go along with pictures to add more explanation/memories.

I am just getting started posting the years of entries and so this will be incomplete for some time. I hope to eventually also post the guestbook entries by date as a comment on the post.

Friday, April 2, 2004 (part 2)

Friday, April 2, 2004 6:08 PM CST

Hello - If you just checked this site today see past journal entries for an early morning entry.

Today was not as good but I pretty much expected that.

I was kind of low on patience today and Nathan kept asking for one thing after another from the cafeteria which is a long way and long elevator wait away.

He lost an hour and a half of time this morning when it was discovered that his IV was leaking. They had to start it over again. He didn't get his antibodies until after 1:00 pm.

His pain was there but he handled it pretty well. The bad part was he was extremely nasty and cranky from his pain medicine. I think I will ask them to try a different one next week.

When we got back (around 3:45) I was cranky too and so I went out for some coffee. I got back to find Nathan had been in pain while I was gone but was doing better. He had wanted to go to McDonalds and so off we went. He didn't eat but 1 or 2 french fries and then we went to Barnes and Noble and he picked some books out. We came back and read and then he wanted to go to bed. As we were snuggling he asked me what my favorite part of the day was and I told him it was the bookstore. I asked him and he said "my favorite part of the day is when I got through with my pain". Can't argue with that one!

Two days off...we need it! Hopefully he will feel well and have some fun.

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