Welcome to Nathan's Cancer Journey

This blog is a reposting of Nathan's Caringbridge page which we updated throughout his battle with Neuroblastoma.

Nathan was born on June 16, 2000, diagnosed with Stage IV Neuroblastoma on April 1, 2003 and died on July 29, 2007.

I have posted the journal here to make it easier to look up by date and also to be able to easily add pictures to the journal entries.

Some of the pictures go along with the text, but many of the pictures you will see were pictures taken on the same date the journal was added, even if the pictures have nothing to do with the text. In the future I may add additional journal entries to go along with pictures to add more explanation/memories.

I am just getting started posting the years of entries and so this will be incomplete for some time. I hope to eventually also post the guestbook entries by date as a comment on the post.

Tuesday, April 13, 2004

Tuesday, April 13, 2004 7:41 PM CDT

Hello - we have had two nice days. Monday the kids and I just ran some errands and hung out together. Monday night we went to a birthday party for Catherine - the 4 year old daughter of my friend Daelyn. The kids had lots of fun.

Today the kids went to daycare and I had a nice day off! Luke and I even got to have lunch together. Both kids had a good day and Tammy (day care provider) remarked about how differnt Nathan's mood and energy level was. It is SO MUCH better. He doesn't seem depressed anymore either. Luke says he is a different child than before we left for New York. I think you can even see it in the new picture I put on the top of the page. He has a sparkle back in his eyes. It is hard to say if things will get worse again but we'll take what we can get when we can get it!

Tomorrow Nathan goes to the clinic for a checkup. Julia is probably coming with us since it is at 1:30 and an awkward time to leave her with anyone since it is normally naptime. It will hopefully be a short appointment anyway.

So - we are just kind of figuring out what ever new routine we will have around here. I am always a little adrift right when we get back from New York. It is hard to adjust.

Two weeks from today Nathan's HAMA test will be run. We are not expecting it to be positive (and thus he would be done with antibodies) but we can always hope! Otherwise we will go back in June.

I will probably not update as much while we are at home. Hopefully there won't be much going on!

Oh - and I know I owe lots of people emails and I hope to get moving on that soon!

No comments:

Post a Comment

Subscribe to: Post Comments (Atom)