Welcome to Nathan's Cancer Journey

This blog is a reposting of Nathan's Caringbridge page which we updated throughout his battle with Neuroblastoma.

Nathan was born on June 16, 2000, diagnosed with Stage IV Neuroblastoma on April 1, 2003 and died on July 29, 2007.

I have posted the journal here to make it easier to look up by date and also to be able to easily add pictures to the journal entries.

Some of the pictures go along with the text, but many of the pictures you will see were pictures taken on the same date the journal was added, even if the pictures have nothing to do with the text. In the future I may add additional journal entries to go along with pictures to add more explanation/memories.

I am just getting started posting the years of entries and so this will be incomplete for some time. I hope to eventually also post the guestbook entries by date as a comment on the post.

Monday, April 26, 2004

Monday, April 26, 2004 7:09 PM CDT

Hello - just a little update and musings from me (Susan).

I got Nathan's hair cut today. See the new picture. I decided it was better to cut it really short than to keep it long and have it stick up just like baby hair (which it is). I think it looks a little more like "normal" hair. I am anxious for Nathan to not look like a cancer patient anymore. He was pleased with the cut as well.

The kids and I had a really good day. We didn't do anything special but it was one of those days where it felt like a "normal" day of a normal mom and her two kids.

Not that I know what normal is anymore. I suppose it is any day without medical concerns. My old normal is long gone and will never be again but my new normal lets me truly appreciate every little smile and hug and mundane activities that we do. I don't think very far in the future anymore - just the next couple of months. Every day that Nathan is doing well and Julia and he can be together and our family of four together really is a special day for me. This is the opposite of what I was like before. I was always looking ahead and never enjoying the moment.

This is not to say it is not hard for me to adjust to a new life because lots of time I don't know what to do with myself. That's ok though - I will work through it.

So - tomorrow is the HAMA test. We are REALLY hoping for a HAMA. I am crossing all my fingers and toes.....

100_0110 100_0111 100_0113 100_0114 100_0117

No comments:

Post a Comment

Subscribe to: Post Comments (Atom)