Welcome to Nathan's Cancer Journey

This blog is a reposting of Nathan's Caringbridge page which we updated throughout his battle with Neuroblastoma.

Nathan was born on June 16, 2000, diagnosed with Stage IV Neuroblastoma on April 1, 2003 and died on July 29, 2007.

I have posted the journal here to make it easier to look up by date and also to be able to easily add pictures to the journal entries.

Some of the pictures go along with the text, but many of the pictures you will see were pictures taken on the same date the journal was added, even if the pictures have nothing to do with the text. In the future I may add additional journal entries to go along with pictures to add more explanation/memories.

I am just getting started posting the years of entries and so this will be incomplete for some time. I hope to eventually also post the guestbook entries by date as a comment on the post.

Friday, April 9, 2004

Friday, April 9, 2004 1:29 PM CDT

Done Done Done with round 4!!! Done with IV GM-CSF and back to the shots net time. Boy was it a long two weeks.

Today was not too bad. Nathan was pretty entertained as we did his IV meds and we played some Candyland, cars, cash register and he helped them bake some scones. He got going on the antibody nice and early and his pain was very manageable. He actually sat up the whole time and for much of the time was half watching the TV. We didn't have to turn on the oxygen at all. He slept afterwards and fussed about leaving but not nearly as bad as the previous two days. He did decide to take a nap when we got home and is doing so right now. Later he wants to go to McDonalds.

We will be flying home tomorrow morning. It is supposed to snow in Colorado. I don't care - it is home!

I want to add that one of the few positive things about being in New York is the wonderful people we have met. We have met many other families going through this and with them we can talk about serious things and also laugh and joke and we are completely comfortable doing so because we all know where we are coming from.

So - the next entry will be from home. Hoping for a very uneventful trip and relatively quiet weekend.

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