Welcome to Nathan's Cancer Journey

This blog is a reposting of Nathan's Caringbridge page which we updated throughout his battle with Neuroblastoma.

Nathan was born on June 16, 2000, diagnosed with Stage IV Neuroblastoma on April 1, 2003 and died on July 29, 2007.

I have posted the journal here to make it easier to look up by date and also to be able to easily add pictures to the journal entries.

Some of the pictures go along with the text, but many of the pictures you will see were pictures taken on the same date the journal was added, even if the pictures have nothing to do with the text. In the future I may add additional journal entries to go along with pictures to add more explanation/memories.

I am just getting started posting the years of entries and so this will be incomplete for some time. I hope to eventually also post the guestbook entries by date as a comment on the post.

Monday, April 5, 2004

Monday, April 5, 2004 2:39 PM CDT

HEllo - sorry for the lack of updates.

Nathan's weekend was pretty good. He didn't have any pain which is the best thing. Saturday he stayed in his pajamas and play for half the day and then we went out for a little walk and went to the candy store. He napped later and my mom arrived. Sunday we went out to breakfast, took a walk in Central Park, and then to Times Square to Toys R Us. Nathan had a great time as usual looking at all the toys. Overall he was in good spirits and decent amount of energy. His counts are doing well - better than they have been in a while. For those of you in the know - his hemoglobin is 11.1 and platelets 156. White counts are sky high due to the GM-CSF he gets with his antibodies. He did plenty of walking around - more and more he wants to walk instead of being in the stroller - at least for a little while. That is SO wonderful to see. As far as bowel pain, it is much improved. He complains a little here and there but non eof the exteme pain he had had. I don't know which of the medications are making the difference - or if it just time passing and him healing.

I am still at the hospital. Nathan's treatment today was not too bad. His pain didn't last too long and then he went to sleep for a while and then awake but not too crabby and now he is sleeping and we are just letting him stay for a while. Usually he does not sleep at all. He normally is rubbing his fingers but looks asleep and it is just his way of getting through the pain. Right now he is definitely sleeping!

I asked the doctor about HAMA and he said that usually if they haven't gotten it by now they don't get it for a few more rounds. From this point on we will be hoping he develops it and we can be done.

I'll update again tomorrow.

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