Welcome to Nathan's Cancer Journey

This blog is a reposting of Nathan's Caringbridge page which we updated throughout his battle with Neuroblastoma.

Nathan was born on June 16, 2000, diagnosed with Stage IV Neuroblastoma on April 1, 2003 and died on July 29, 2007.

I have posted the journal here to make it easier to look up by date and also to be able to easily add pictures to the journal entries.

Some of the pictures go along with the text, but many of the pictures you will see were pictures taken on the same date the journal was added, even if the pictures have nothing to do with the text. In the future I may add additional journal entries to go along with pictures to add more explanation/memories.

I am just getting started posting the years of entries and so this will be incomplete for some time. I hope to eventually also post the guestbook entries by date as a comment on the post.

Friday, April 2, 2004

Friday, April 2, 2004 5:28 AM CST

Good morning,

Much, Much better day yesterday. We got in his room fairly early and when he got his pain it was very different. It was not nearly as intense and he didn't even lay down right away. He also watched TV some during it which is not usual. The thing that bothered him the most was that he broke out in a very hot sweat and so instead of using the oxygen for his nose I used it to blow cool air on his head and I rubbed his head.

We got back and he sat on the couch for a few minutes and then asked me when it woudl be naptime. So I put him down and he woke up after an hour or so and was feeling good. He played some and then wanted to go out for dinner and so we did. Afterwards we walked over to the drug store for some easter candy. As we walked he told me he didn't need the stroller for the hospital that if we couldn't get a taxi or bus he would just walk (not possible at this distance but he doesn't know that).

He went to bed very happy and playful and woke up full of smiles too. What a relief to have such a good day. Who knows how today will be - with antibodies each day is different. Either way it is Friday today so that in itself makes it a better day!

Tomorrow Joan leaves and my mom arrives. Nathan and I haven't picked out an activity for the day yet but I am sure he will come up with an outing.

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