Welcome to Nathan's Cancer Journey

This blog is a reposting of Nathan's Caringbridge page which we updated throughout his battle with Neuroblastoma.

Nathan was born on June 16, 2000, diagnosed with Stage IV Neuroblastoma on April 1, 2003 and died on July 29, 2007.

I have posted the journal here to make it easier to look up by date and also to be able to easily add pictures to the journal entries.

Some of the pictures go along with the text, but many of the pictures you will see were pictures taken on the same date the journal was added, even if the pictures have nothing to do with the text. In the future I may add additional journal entries to go along with pictures to add more explanation/memories.

I am just getting started posting the years of entries and so this will be incomplete for some time. I hope to eventually also post the guestbook entries by date as a comment on the post.

Saturday, April 17, 2004

Saturday, April 17, 2004 7:43 AM CDT

Hello - All is fine here. We have been enjoying some "normal" days around here.

Nathan went to the oncologist on Wednesday for a routine check-up. We decided to test his urine. That is one neuroblastoma test that hasn't been done since after his surgery. Here in Colorado they are willing to do it as a spot check whereas in New York they want a multiple-hour collection. I let it slide in New York because I didn't want to put Nathan through that in his newly potty-trained stage. We may have the results next Wednesday when we go back.

I made an appointment for Nathan with a Ear Nose and Throat doctor to evaluate his hearing and what needs he may have there. He definately has trouble hearing us - especially when there is any kind of ambient noise. We know he has hearing loss but haven't been advised on what to do about it so we are glad to have this appointment. He will also be going to the dentist. I am not sure what is going on with his teeth but the chemo he has had can affect them and it is time to get that checked out.

Nathan continues to feel fairly good. He is not quite as peppy as he was the first few days we were home but still seems to feel good.

We have no plans this weekend. Just have some good family time.

Hope you all have a good weekend as well.

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