Sunday, October 3, 2004 4:19 PM CDT
Hello - sorry so long between entries.
We haven't heard a thing from any doctor since Tuesday. I will definitley be calling Nathan's local doctor tomorrow to see what contact he has had with the NY doctors about the scans. I am also hoping for some additional test results.
The end of the week found me with a horrible cold and Julia and Nathan seem to have it to a lesser extent. We mainly stayed home and took it easy.
Yesterday we let the kids have "quiet time" together in the bedroom and they were very quiet. When we went to let them out they had taken dry-erase markers and drawn over EVERYTHING in their bedroom. They had drawn extensively all over their bodies and faces (I'll post of picture of that later) and quite unfortunately all over the walls, furniture and bedding. Luke and I were furious of course. The marker will never come off of the bunk beds. We will have to paint or sand and refinish the whole thing if we want it to ever look nice again. We will have to repaint some of the walls. The dressers I was able to remove most of it, but you can still see it if you get close. Luke and I were just shocked because both of them, but especially Nathan KNOWS better. He started to get upset when he realized the marker would not come right off of his skin and he might have to go out in public like that. Both of them have been SO impossible lately. They are misbehaving and throwing fits so often it is just a nightmare. Luke and I spend all our time yelling at them and punishing them. Either something is wrong or else that is just the magic combination of a 4 year old and 2.5 year old.
I'll update again when I learn anything more about tests.
ic
more pictures:
Welcome to Nathan's Cancer Journey
This blog is a reposting of Nathan's Caringbridge page which we updated throughout his battle with Neuroblastoma.
Nathan was born on June 16, 2000, diagnosed with Stage IV Neuroblastoma on April 1, 2003 and died on July 29, 2007.
I have posted the journal here to make it easier to look up by date and also to be able to easily add pictures to the journal entries.
Some of the pictures go along with the text, but many of the pictures you will see were pictures taken on the same date the journal was added, even if the pictures have nothing to do with the text. In the future I may add additional journal entries to go along with pictures to add more explanation/memories.
I am just getting started posting the years of entries and so this will be incomplete for some time. I hope to eventually also post the guestbook entries by date as a comment on the post.
Nathan was born on June 16, 2000, diagnosed with Stage IV Neuroblastoma on April 1, 2003 and died on July 29, 2007.
I have posted the journal here to make it easier to look up by date and also to be able to easily add pictures to the journal entries.
Some of the pictures go along with the text, but many of the pictures you will see were pictures taken on the same date the journal was added, even if the pictures have nothing to do with the text. In the future I may add additional journal entries to go along with pictures to add more explanation/memories.
I am just getting started posting the years of entries and so this will be incomplete for some time. I hope to eventually also post the guestbook entries by date as a comment on the post.
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