Welcome to Nathan's Cancer Journey

This blog is a reposting of Nathan's Caringbridge page which we updated throughout his battle with Neuroblastoma.

Nathan was born on June 16, 2000, diagnosed with Stage IV Neuroblastoma on April 1, 2003 and died on July 29, 2007.

I have posted the journal here to make it easier to look up by date and also to be able to easily add pictures to the journal entries.

Some of the pictures go along with the text, but many of the pictures you will see were pictures taken on the same date the journal was added, even if the pictures have nothing to do with the text. In the future I may add additional journal entries to go along with pictures to add more explanation/memories.

I am just getting started posting the years of entries and so this will be incomplete for some time. I hope to eventually also post the guestbook entries by date as a comment on the post.

Monday, October 25, 2004

Monday, October 25, 2004 11:56 AM CDT

Hello from New York,

We had a pretty easy trip here. We are having some problems with our room lock (as in the keys won't work and someone has to let us in every time) and so I think they will move us today. We also had some very loud neighbors last night. The rooms have doors that join them and there seems to be no insulation and it is as if the neighbors are standing in your room. If we move, I hope that will be better.

Nathan had a checkup when we got to the hospital and I was very happy to see that he has gained almost 4 pounds and 3 cm in height in the eight weeks we have been away. They had to rewrite for all his medications and so we had a long wait before his antibodies. He got them and we waited for the pain. We waited and played and the antibodies finished and were flushed in and I still so no signs of pain. While we were eating he told me his pain was gone and I was surprised to hear he had any at all. We need lots of HAMA thoughts and see what happens tomorrow. I can't even begin to tell you what it would mean to us if Nathan gets a HAMA. I am trying not to get my hopes up too high, and even if he doesn't HAMA the ease of the treatments like this would be fine. He ate his whole lunch and we came back and now he is running around and laughing and playing. Usually on the first Monday we are at the hospital for hours afterwards and he is in pain the rest of the afternoon and I usually give him pain medicine later in the afternoon again. What a difference!

So - all of those out there praying for Nathan, please pray that if it is what is meant for Nathan, that he develop the HAMA and this can be our last trip for antibodies.

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