Welcome to Nathan's Cancer Journey

This blog is a reposting of Nathan's Caringbridge page which we updated throughout his battle with Neuroblastoma.

Nathan was born on June 16, 2000, diagnosed with Stage IV Neuroblastoma on April 1, 2003 and died on July 29, 2007.

I have posted the journal here to make it easier to look up by date and also to be able to easily add pictures to the journal entries.

Some of the pictures go along with the text, but many of the pictures you will see were pictures taken on the same date the journal was added, even if the pictures have nothing to do with the text. In the future I may add additional journal entries to go along with pictures to add more explanation/memories.

I am just getting started posting the years of entries and so this will be incomplete for some time. I hope to eventually also post the guestbook entries by date as a comment on the post.

Wednesday, October 27, 2004

Wednesday, October 27, 2004 9:36 AM CDT

A quick update....Nathan is having pain today. I am not nearly as disappointed as I thought. My immediate thoughts were that I hated to see him in pain, but also that I could keep doing antibodies forever if the cancer would stay away. I will update more later

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I wrote that one-handed during his treatment so I will elaborate. We decided not to pre-medicate him today. He had pain and it was pretty intense. The nurse said that at the very least it is a sign his body is working on a HAMA. So - hopefully we are on the way to one in the next few treatments. I didn't ask what to expect tomorrow. We will pre-medicate and see what happens.

We got out of there around 11:15 and I got Nathan some food. He rested for a half hour and then ate. Shortly after that he was feeling better so we went off to the central park zoo. He had a great time there and ran around laughing and playing. I put a picture on the photo page. I was so glad to see him feeling so well and so happy after this morning.

I have him in bed watching TV now and it is actually a decent time tonight.

I will update tomorrow. I am very curious to see what his treatment brings. It will be a later day because they have to draw blood and his IV is most likely not going to draw and so he will have to have a stick.

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