Welcome to Nathan's Cancer Journey

This blog is a reposting of Nathan's Caringbridge page which we updated throughout his battle with Neuroblastoma.

Nathan was born on June 16, 2000, diagnosed with Stage IV Neuroblastoma on April 1, 2003 and died on July 29, 2007.

I have posted the journal here to make it easier to look up by date and also to be able to easily add pictures to the journal entries.

Some of the pictures go along with the text, but many of the pictures you will see were pictures taken on the same date the journal was added, even if the pictures have nothing to do with the text. In the future I may add additional journal entries to go along with pictures to add more explanation/memories.

I am just getting started posting the years of entries and so this will be incomplete for some time. I hope to eventually also post the guestbook entries by date as a comment on the post.

Wednesday, October 13, 2004

Wednesday, October 13, 2004 4:20 PM CDT


Hello -


Well - still no word about results from the urine test. I emailed Nathan's doctor and have previously asked him and so I just don't know how much more I can harrass him. I will ask him to check one more time before we leave for New York. I was able to leave a message for him to ask if Nathan needed a flu shot. He said yes, but then they found out their order was cancelled and so I put Nathan on a list at his pediatrician's office to see if he can get a shot through them. I have heard that they aren't offering them at the clinic in NYC and so this is our only chance.


With it being fall break this week, Nathan hasn't had preschool. Monday we went to a playgroup at McDonalds and let the kids play for a long time. Nathan has finally conquered his fear of those high tubes and slides and has a blast. Physically it is a great thing for him to do. Yesterday the kids were at daycare all day. Usually I have to pick up Nathan in the middle of the day for preschool so it was nice not to have to do that. I thought I might go see a movie but there was actually no movie I was interrested in. Winter blew in last night and so we have been staying home mostly today playing and baking cookies.


Our friends Janene and Joshua are in New York right now where Joshua is getting his 7th round of antibodies (which is the round Nathan is about to have) and he seems to be developing a HAMA. We are SO excited for them and are hoping they send some of that magic Nathan's way! They won't know until next Tuesday for sure but we are keeping our fingers crossed for them!


That's about all that has been going on here. Nothing on the medical front until next Wednesday when Nathan starts his shots.


Until next time...

















No comments: