Welcome to Nathan's Cancer Journey

This blog is a reposting of Nathan's Caringbridge page which we updated throughout his battle with Neuroblastoma.

Nathan was born on June 16, 2000, diagnosed with Stage IV Neuroblastoma on April 1, 2003 and died on July 29, 2007.

I have posted the journal here to make it easier to look up by date and also to be able to easily add pictures to the journal entries.

Some of the pictures go along with the text, but many of the pictures you will see were pictures taken on the same date the journal was added, even if the pictures have nothing to do with the text. In the future I may add additional journal entries to go along with pictures to add more explanation/memories.

I am just getting started posting the years of entries and so this will be incomplete for some time. I hope to eventually also post the guestbook entries by date as a comment on the post.

Tuesday, October 26, 2004

Tuesday, October 26, 2004 10:34 AM CDT

Hello,

Well, another easy day. I didn't see any evidence of pain. I asked him about it later and he said he had pain, so I asked him when and he said when he was asleep from the dilauded. Well, he didn't actually sleep with it, but it does make him very sleepy and he lay down. He got up and played computer games before it was possible that pain could have hit and so I just think he is trying to work it out in his head because he knows he has pain usually. We got out of there by 10:15 and we went to the park across the street and he played and chased pigeons for a half and hour and then he got some lunch at McDonalds.

The antibody nurses seem very skeptical about him possibly developing a HAMA. Yesterday they said he probably had a low-level HAMA and it would go away today. So, today one of them came in and said, "pain today, right?" and we said no so she said that it is a low level HAMA and usually Wednesday it will go away and he will have pain. I THINK if he doesn't have pain tomorrow they might consider the possibility. One of the nurses had told the team yesterday that Nathan didn't have pain, but that often on the first Monday and Tuesday he didn't. That is anything but true. So anyway, I don't know quite what to make of the attitudes but I think maybe we will have a better idea tomorrow. What a downer it will be if he has pain tomorrow!

I am not sure what we will do this afternoon. Tonight we will go to Joan's for dinner. Even though Nathan had no pain, he did have dilauded and therefore is still quite cranky! So - we will have to see what he wants to do.

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