Welcome to Nathan's Cancer Journey

This blog is a reposting of Nathan's Caringbridge page which we updated throughout his battle with Neuroblastoma.

Nathan was born on June 16, 2000, diagnosed with Stage IV Neuroblastoma on April 1, 2003 and died on July 29, 2007.

I have posted the journal here to make it easier to look up by date and also to be able to easily add pictures to the journal entries.

Some of the pictures go along with the text, but many of the pictures you will see were pictures taken on the same date the journal was added, even if the pictures have nothing to do with the text. In the future I may add additional journal entries to go along with pictures to add more explanation/memories.

I am just getting started posting the years of entries and so this will be incomplete for some time. I hope to eventually also post the guestbook entries by date as a comment on the post.

Friday, October 8, 2004

Friday, October 8, 2004 5:02 PM CDT

Hello - sorry that I didn't update sooner but I just finally got to talk to the Doctor in New York today. He called me to ask if Nathan could delay his trip by a week. In the end we can not because Luke has already arranged his travel schedule for work around the trip and cannot change it now. I don't know the reasons for asking for the delay but I am now expecting a hard week because they are most likely overbooked and understaffed. I asked him about the MIBG scan and he didn't see anything to worry about and said many of the same things about how the surgery affects the way the scan looks. He said we could look at the urine test to reassure us, but unfortunately I still don't have those results! I have an email to the doctor here to have him double-check. I will let you know if I hear anything. The "final" bone marrow results also came back negative. They send some of the bone marrow out of state to test for microscopic disease and so that is good news.

Our friend Lori is visiting with us this week. Yesterday we went to a pumpkin patch. They also had apples to pick. The kids LOVED that. In fact they both got themselves apples to eat for breakfast before Luke and I got up this morning. We also picked some pumpkins right off the vine. Today we attempted to bake some cookies from a kit that failed so I think we will try again this weekend. If the weather holds, we will go to the little amusement park tomorrow. I have been wanting to get back there and since Lori will be able to come with us there will be enough adults (Luke has to work).

Thanks to everyone who responded about the bunk beds. The Magic Eraser worked on the dressers and wood doors, but not on the bunkbed or walls. Unfortunately the bunkbed has no varnish and so the marked went right into the wood. I did manage to fade it a little with rubbing alcohol. I do know this is normal childhood behavior, it is just that the stress level has been so high around here that it was hard to take on top of everything else.

I had a parent-teacher conference last night with Nathan's teacher. He is doing well. He has definitely made improvements in his interactions with other children and physical abilities. He still has some work to do in both areas. His fine motor skills are also behind, but they work on that a lot and he has learned to write and N and an A and is getting better at tracing and cutting. All and all they are pleased with his progress as am I. Next week is fall break and so he doesn't have any preschool. I told him that and he was pretty sad about it. I will have to try to do some fun things with them this week. Since neither of them really naps anymore - a whole day without preschool seems like an eternity.

























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