Welcome to Nathan's Cancer Journey

This blog is a reposting of Nathan's Caringbridge page which we updated throughout his battle with Neuroblastoma.

Nathan was born on June 16, 2000, diagnosed with Stage IV Neuroblastoma on April 1, 2003 and died on July 29, 2007.

I have posted the journal here to make it easier to look up by date and also to be able to easily add pictures to the journal entries.

Some of the pictures go along with the text, but many of the pictures you will see were pictures taken on the same date the journal was added, even if the pictures have nothing to do with the text. In the future I may add additional journal entries to go along with pictures to add more explanation/memories.

I am just getting started posting the years of entries and so this will be incomplete for some time. I hope to eventually also post the guestbook entries by date as a comment on the post.

Monday, May 12, 2003

Monday, May 12, 2003 1:53 PM CDT

Susan here...

Nate went to the clinic this morning. His counts are up - but he still has a low immunity. His platelets and red blood cells are very low and he will be transfused tomorrow. He is still eating and drinking - he has only a few spots in his mouth that don't seem to be bothering him. Unfortunately he is in a lot of pain from constipation and/or sores in his digestive tract. The pain comes and goes with his bodily functions. He is pretty happy when not in pain.

The doctors plan for him to have a hearing test and CAT scan early next week. The hearing test is neccessary because the upcoming round of chemo contains drugs that damage high frequency hearing. The CAT scan will give us an idea how his tumor is responding. They may also do another bone marrow aspiration next week. We will of course keep you updated.

So we'll be in the clinic tomorrow but hopefully not Wed. and by Thursday we hope his counts are up and he can get out and play a little. He may very well need another platelet transfusion by the end of the week. If his plateletes aren't up on their own by next Monday they will have to put his next round of chemo off by a week.

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