Luke here...I hope you are all enjoying your Memorial Day. There really isn't too much news beyond what Susan wrote Saturday morning. Last week was a long one, but we aren't too much worse for the wear. Of all of us, Nathan is probably the one holding up the best. We had expected this cycle to be horrible on him based on accounts from others that have gone through this. It hasn't been so bad. Nathan has had an appetite, which is great since a lot of kids don't with this chemo drug. He has had more vomitting than with previous cycles, but nothing terrible. He holds down some meals and doesn't others. There doesn't seem to be rhyme or reason. He does have a disturbing habit of vomitting onto his plate (sorry if that is too much information), but no big deal. He handles it really well too. He doesn't seem to have a big hang up over it. He just goes about his business and then returns to whatever held his attention. Last night he vomitted at the dinner table. We cleaned him up sitting at his high chair and when we had a new shirt on him he said, "Can I have some more rice please?".
All in all things are going okay and we are having a pretty good weekend. I'm working to make up some hours missed during this past hectic week. Susan's parents (Grandpa Bill and Grandma C) are still here and being a huge help to us. Having grandparents here is very important to Julia when she is feeling neglected by Susan and I. Bill has also taken on a bunch of projects around the house and been a huge help on that front. He has knocked off some projects we have wanted to tackle literally for years. We will do a grandparent shift change this week with Bill and Carolyn heading back to South Carolina and my parents (Grandpa Mike and Grandma Kathy) coming into town. We also get to have a brief visit from my sister Anna (Aunt Annie) too.
We don't have a set schedule for next week. Nathan will be in the clinic for counts tomorrow. We know his immune system is already down. I'm guessing he will need red blood cells, platelets, or both on Wednesday. After that we will be waiting for his counts to come up and hoping he doesn't get fever or infection.
We will be throwing kabobs on the grill this afternoon. I'm looking forward to a couple of beers around the grill and a good meal with family. I hope you all have had a good weekend.
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