Welcome to Nathan's Cancer Journey

This blog is a reposting of Nathan's Caringbridge page which we updated throughout his battle with Neuroblastoma.

Nathan was born on June 16, 2000, diagnosed with Stage IV Neuroblastoma on April 1, 2003 and died on July 29, 2007.

I have posted the journal here to make it easier to look up by date and also to be able to easily add pictures to the journal entries.

Some of the pictures go along with the text, but many of the pictures you will see were pictures taken on the same date the journal was added, even if the pictures have nothing to do with the text. In the future I may add additional journal entries to go along with pictures to add more explanation/memories.

I am just getting started posting the years of entries and so this will be incomplete for some time. I hope to eventually also post the guestbook entries by date as a comment on the post.

Thursday, May 29, 2003

Thursday, May 29, 2003 8:43 PM CDT

Susan here..

Well - as we expected Nathan will be treated by different doctors for his stem cell rescue and transplant. Unfortunately they do things differently and so according to their plan Nathan's immunity needs to come up first, then he needs to be off the immunity boosting drug (neupogen) for 2 days and then back on it for 4 days and the next day they do the rescue. They are hoping for him to be off of it by tues and then on it for Fri Sat Sun and Mon and then the next day (June 9)have the rescue. The only problem is we don't know how many days the rescue will take and he is due to start chemo on Wednesday. If he is still in Denver he will have to start late and that may mean puttin ghim back in the hospital so he can have it all weekend. Otherwise we would have to wait until Monday June 16 (Nate's birthday) to start the next round. We hate to put it off like that. If his immunity doesn't come up by Tuesday I don't know what they will do because that will really put him behind.

He seems to be feeling alot better today. He has eaten pretty close to normally and done alot of playing. He skinned his knees pretty hard playing outside this evening. One mysterious thing is that all of a sudden he is not hearing very well. It could be the chemo or maybe just congestion. We will ask his doctors about it tomorrow.

Well - off to enjoy some of my evening.

No comments:

Post a Comment

Subscribe to: Post Comments (Atom)