Welcome to Nathan's Cancer Journey

This blog is a reposting of Nathan's Caringbridge page which we updated throughout his battle with Neuroblastoma.

Nathan was born on June 16, 2000, diagnosed with Stage IV Neuroblastoma on April 1, 2003 and died on July 29, 2007.

I have posted the journal here to make it easier to look up by date and also to be able to easily add pictures to the journal entries.

Some of the pictures go along with the text, but many of the pictures you will see were pictures taken on the same date the journal was added, even if the pictures have nothing to do with the text. In the future I may add additional journal entries to go along with pictures to add more explanation/memories.

I am just getting started posting the years of entries and so this will be incomplete for some time. I hope to eventually also post the guestbook entries by date as a comment on the post.

Tuesday, May 13, 2003

Tuesday, May 13, 2003 9:44 PM CDT

Susan here...

Nathan went to the clinic for red blood cells and platelets today. We were there from 10:15 to 3:45 so it was a fairly long day. His counts are still on the way up. He goes back Thursday afternoon for a blood count check.

Monday he will have a CAT scan and a hearing test. If his platelets are high enough he will start chemo on Tuesday. He will be getting different chemo drugs this time and they are supposed to make him much sicker and they will also be given over 4 days instead of 3.

So - hopefully Fri - Sun he can get out and have some fun before feeling bad again. My parents arrived yesterday and watched Julia all day today. She was very happy about that.

Nathan is still in a lot of pain in his bottom. It has been keeping him up at night. Hopefully as his counts go up the pain will go away and we can all get some sleep.

That's about it. We are all so tired. Next week will be rough so I am hoping we can get some good sleep the enxt few nights

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