Welcome to Nathan's Cancer Journey

This blog is a reposting of Nathan's Caringbridge page which we updated throughout his battle with Neuroblastoma.

Nathan was born on June 16, 2000, diagnosed with Stage IV Neuroblastoma on April 1, 2003 and died on July 29, 2007.

I have posted the journal here to make it easier to look up by date and also to be able to easily add pictures to the journal entries.

Some of the pictures go along with the text, but many of the pictures you will see were pictures taken on the same date the journal was added, even if the pictures have nothing to do with the text. In the future I may add additional journal entries to go along with pictures to add more explanation/memories.

I am just getting started posting the years of entries and so this will be incomplete for some time. I hope to eventually also post the guestbook entries by date as a comment on the post.

Saturday, May 24, 2003

Saturday, May 24, 2003 7:42 AM CDT

Susan here...

Yesterday we were at the clinic from 9 - 5:30. LONG day. There was a mix-up at the blood bank and he didn't get his blood until late. Nathan did really well and didn't ask to come home once. He even took a two hour nap. After his nap he did throw up and also threw up in the car on the way home. He was really good and held the throw up tub all the way home. He was fine the rest of the evening. He is not eating however.

We got some more good news. The bone marrow in his left hip which was 100% cancerous at diagnosis, 60% cancerous after round 1 is now 10% cancerous after round 2. The doctors are hopeful that this current round 3 will clear it up enough to harvest.

This morning Nathan woke up feeling a little sick so he got his anti-nausea mediciation in his bed and seems to be feeling well now. We are not really expecting him to eat much this weekend and he is expected to start supplemental nutrition on Tuesday.

I got to see the cat scan images yesterday. The doctor gained access to the hospital's database at his office. If we bring a CD he will actually burn us a copy. I was not ready to see the image at diagnosis but it was interresting to see it this time. I got to look at both scans side by side. It is hard to imagine that tumor inside him. Especially when he is running around playing.

Today we will probably hang out at home. I think car rides are a little hard on Nathan's tummy.

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