Welcome to Nathan's Cancer Journey

This blog is a reposting of Nathan's Caringbridge page which we updated throughout his battle with Neuroblastoma.

Nathan was born on June 16, 2000, diagnosed with Stage IV Neuroblastoma on April 1, 2003 and died on July 29, 2007.

I have posted the journal here to make it easier to look up by date and also to be able to easily add pictures to the journal entries.

Some of the pictures go along with the text, but many of the pictures you will see were pictures taken on the same date the journal was added, even if the pictures have nothing to do with the text. In the future I may add additional journal entries to go along with pictures to add more explanation/memories.

I am just getting started posting the years of entries and so this will be incomplete for some time. I hope to eventually also post the guestbook entries by date as a comment on the post.

Monday, May 19, 2003

Monday, May 19, 2003 3:21 PM CDT

Susan here...

Nathan had his CAT scan this morning. We went in around 7:00 am and started giving him the contrast that he had to drink. Last time he wouldn't drink it and they had to put a tube through his nose to his stomach. This time we were able to slowly give him the contrast by mouth through a syringe (many syringes full). He was then taken in the room and sedated for the scan. Afterwards he had the hearing test and remained asleep for that as well.

Saturday night when we changed his dressing on his central line we noticed that it appeared it had pulled out somewhat. This was confirmed today at the clinic and he was immediately scheduled for surgery tomorrow to put a new one in. He will have the bone marrow biopsy at the same time. It is outpatient surgery and supposed to be easy to recover from.

We will start his chemo on Wednesday instead of tomorrow now. They can do it in 3 days instead of 4 and so will just condense it so he doesn't have to wait another week to get it.

As far as resutls go - we will get the CAT scan results maybe tomorrow by phone or they might just wait until Wed. when we go in. The bone marrow results I am guessing will be available Friday or so.

So - Nathan did a good job today and it wasn't too traumatic. He is currently napping and tomorrow will be a hard day. He can't eat anything after midnight tonight and surgery will be at 11:00 am so that is going to be rough not feeding him.

We will update you tomorrow after the surgery.

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