Welcome to Nathan's Cancer Journey

This blog is a reposting of Nathan's Caringbridge page which we updated throughout his battle with Neuroblastoma.

Nathan was born on June 16, 2000, diagnosed with Stage IV Neuroblastoma on April 1, 2003 and died on July 29, 2007.

I have posted the journal here to make it easier to look up by date and also to be able to easily add pictures to the journal entries.

Some of the pictures go along with the text, but many of the pictures you will see were pictures taken on the same date the journal was added, even if the pictures have nothing to do with the text. In the future I may add additional journal entries to go along with pictures to add more explanation/memories.

I am just getting started posting the years of entries and so this will be incomplete for some time. I hope to eventually also post the guestbook entries by date as a comment on the post.

Saturday, May 10, 2003

Saturday, May 10, 2003 9:52 AM CDT

Luke here...Not much today. Nathan had a platelet transfusion yesterday. They still showed a little low post infusion, so it is likely he will need red blood cells and platelets next week. We have standing admittance orders for the weekend in case his fever spikes. We are hopeful we can avoid a hospital stay this nadir, but he could be the type that gets fevers with each cycle. We shall see. Monday we will be in for counts. His spirits are okay. We can definitely tell his counts are down by his activity level and his crankiness, but I would say his spirits and activity level are much better than the first cycle. It is nice to see him handling things well.

We had great help last week from our friends Brian and Lori. After the weekend the grandparent cavalry arrives. Susan's parents, Bill and Carolyn (Grandpa Bill and Grandma C) will arrive on Monday for a two week stay. Right as they depart my parents and sister (Grandpa Mike, Grandma Kathy, and Aunt Aunnie) arrive. Anna will only stay 4 or 5 days and then my parents will be here through June, after which Bill and Carolyn will be back likely for July and August. It will be wonderful to have the help and support that they provide. It will be especially important for Julia who is feeling a little neglected through all of this.

Thanks to everyone for continuing to look in on us and to send cards and letters to Nathan. Getting mail brightens up his day.

Unless we end up in the hospital with fever, there probably won't be much going on this weekend. Don't be surprised if there is no update this evening or tomorrow and we will let everyone know how his counts and exam go on Monday.

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