Welcome to Nathan's Cancer Journey

This blog is a reposting of Nathan's Caringbridge page which we updated throughout his battle with Neuroblastoma.

Nathan was born on June 16, 2000, diagnosed with Stage IV Neuroblastoma on April 1, 2003 and died on July 29, 2007.

I have posted the journal here to make it easier to look up by date and also to be able to easily add pictures to the journal entries.

Some of the pictures go along with the text, but many of the pictures you will see were pictures taken on the same date the journal was added, even if the pictures have nothing to do with the text. In the future I may add additional journal entries to go along with pictures to add more explanation/memories.

I am just getting started posting the years of entries and so this will be incomplete for some time. I hope to eventually also post the guestbook entries by date as a comment on the post.

Wednesday, May 28, 2003

Wednesday, May 28, 2003 9:42 AM CDT

Susan here...

Well - we went to the clinic yesterday and were surprised to find out his blood counts were all good. His white blood count was low on Friday and so we thought it was on its way down but apparently not. So we are a little frustrated that we kept him at home all weekend when we could have gotten out a little. We will expect it to be down on Friday when he goes in next.

He didn't throw up at all yesterday and drank milk and ate stew and meatloaf - so hopefully his nausea is on the way out. He did lose 2 pounds and so he is on supplemental nutrition.

We are going around in circles with the insurance company figuring out where and who will perform the stem cell rescue and transplant. It is long and complicated but the bottom line is Nathan's doctors want to harvest his stem cells early next week no matter what and so the insurance issue has to be settled soon. It may be have to be done by another group of doctors in Denver that don't know Nathan. So he will have is stem cells rescued even though they will not know if his bone marrow is clear of cancer. They will test it after they take it and see. If it is not clean enough they will save it and harvest again. The longer they wait to do the harvest the more "tired" the stem cells get and so they really want to be able to use the ones they get next week. So we will just have to wait and see what happens. We should know tomorrow morning the who and where of the rescue and can begin planning for next week.

We will update tomorrow.

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