Welcome to Nathan's Cancer Journey

This blog is a reposting of Nathan's Caringbridge page which we updated throughout his battle with Neuroblastoma.

Nathan was born on June 16, 2000, diagnosed with Stage IV Neuroblastoma on April 1, 2003 and died on July 29, 2007.

I have posted the journal here to make it easier to look up by date and also to be able to easily add pictures to the journal entries.

Some of the pictures go along with the text, but many of the pictures you will see were pictures taken on the same date the journal was added, even if the pictures have nothing to do with the text. In the future I may add additional journal entries to go along with pictures to add more explanation/memories.

I am just getting started posting the years of entries and so this will be incomplete for some time. I hope to eventually also post the guestbook entries by date as a comment on the post.

Friday, October 17, 2003

Friday, October 17, 2003 7:30 PM CDT

Susan here

Yesterday was a clinic-free day. Luke and I took Julia out in the morning to the mall and to lunch. It was nice to spend time with her like that. Nathan stayed home and played with Grandma Kathy. He spent the whole day in his pajamas and had a good time.

Today we all headed off for the clinic this morning. Grandma Kathy watched Julia while Nathan Luke and I went back to the exam room. Nathan's counts were about the same as Wednesday. His platelets actually came up a little so Nathan did not have any transfusions today. We brought Julia with us so she could have a flu shot. She did pretty well with it. She got a beenie baby when she was done and is currently hugging it and reading.

Nathan felt really good today and played outside some and also ran around plenty. We bought the kids playground balls that look like pumpkins and they were a hit. Right now he is in the process of turning off all the lights so he can look at a fake jack'o'lantern we bought. Real pumpkins have way too much mold so we have the plug in kind.

As far as what is next...we are still gathering information. We are hear through next week for sure. They are still figuring out if we can do radiation here or in Colorado Springs. We are also looking into a study in New York for Nathan. He will probably have a cat scan next week to see what that piece of tumor looks like.

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