Wednesday, October 22, 2003 10:34 AM CDT
Luke here...Sorry about the lack of updates. We haven't updated since Sunday. The weekend wrapped up pretty well. Nothing exciting except for a trip to Greeley to see Susan's brother. Monday I returned to work. We lack a broadband connection in our apartment which is essential to my being able to work remotely. It turns out I can use the network at the foundation house though, so I've spent most of my days here in the communal area of the foundation working. It is going okay. Nathan had an exam at clinic on Monday afternoon. His counts were very good. His ANC rose to over 3000 without any help from neupogen. The really surprising thing is his platelets. It has been 11 days since his last platelet transfusion. After he burned off the transfused platelets, he hovered in the mid-20s. Twenty is the cutoff for transfusion we are using right now. On Friday he was up in the high 20s so it was clear that his marrow was creating some platelets. Monday he was up to 40 so he is doing great on that front. His hemoglobin is a little low and bordering on the need for transfusion. I think he well get packed red cells before the weekend. So far his need for transfusion has been very little so he is doing awesome.
On the planning front we are still a little up in the air. He will have a CT scan of his abdomen on Thursday to get a new look at the remaining piece of tumor. we will hopefully have a MIBG scan next week to determine how much disease remains in his body after transplant. We are still working on details of future treatment. We are hopefull that once he gets his MIBG scan next week we will be able to move home to the Springs.
He has an appointment this morning. I'm going to try and do double duty of watching Julia while she plays here at the foundation house and working at the same time. We'll see how that goes. If anything interesting comes out of today's appointment we will add to this entry.
Thanks for reading.
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