Welcome to Nathan's Cancer Journey

This blog is a reposting of Nathan's Caringbridge page which we updated throughout his battle with Neuroblastoma.

Nathan was born on June 16, 2000, diagnosed with Stage IV Neuroblastoma on April 1, 2003 and died on July 29, 2007.

I have posted the journal here to make it easier to look up by date and also to be able to easily add pictures to the journal entries.

Some of the pictures go along with the text, but many of the pictures you will see were pictures taken on the same date the journal was added, even if the pictures have nothing to do with the text. In the future I may add additional journal entries to go along with pictures to add more explanation/memories.

I am just getting started posting the years of entries and so this will be incomplete for some time. I hope to eventually also post the guestbook entries by date as a comment on the post.

Wednesday, October 8, 2003

Wednesday, October 8, 2003 8:53 PM CDT

Susan here...

Today was a pretty good day. We woke up in the morning not to an alarm and when we woke up Nathan was awake and just laying in his bed peacefully. We lazed around for a while and then headed for the clinic. He had his blood counts done and he needed platelets but his other counts are good. We had to sit around and wait for that to get arranged and Nathan was not very happy. His bottom was really hurting him. He still has diarrhea and a bad diaper rash. We finally got out of there and walked over to the hospital and they put Nathan in a private room in the infusion area. After a while he got his platelets and a diuretic (to shed some fluid retention) and then fell asleep right before we were to leave. I put him in the wagon and his laid down as I pulled him back to the apartment. We got back to the apartment about 6 hours after we left and Nathan was still tired and he watched some TV. A little later he and Luke went out to the playground and he really enjoyed that. He didn't really eat any dinner but had lots of fun playing after dinner and had a good bath and went to bed.

One problem we are having is that it s eems one of his medications is causing him to throw up. Luke talked to a mother of a little boy who also always throws up that medication - so as of right now we are not giving him that any more. We will talk to his doctor about it tomorrow.

There are some new pictures in the photo album. You will see that he has to be fully equipped to play outside with a mask, sunglasses, a hat and sunscreen. But he has fun anyway!

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