Welcome to Nathan's Cancer Journey

This blog is a reposting of Nathan's Caringbridge page which we updated throughout his battle with Neuroblastoma.

Nathan was born on June 16, 2000, diagnosed with Stage IV Neuroblastoma on April 1, 2003 and died on July 29, 2007.

I have posted the journal here to make it easier to look up by date and also to be able to easily add pictures to the journal entries.

Some of the pictures go along with the text, but many of the pictures you will see were pictures taken on the same date the journal was added, even if the pictures have nothing to do with the text. In the future I may add additional journal entries to go along with pictures to add more explanation/memories.

I am just getting started posting the years of entries and so this will be incomplete for some time. I hope to eventually also post the guestbook entries by date as a comment on the post.

Saturday, October 4, 2003

Saturday, October 4, 2003 10:39 PM CDT

Nathan's day was good and bad both - but fine from the medical perspective. This morning he woke up around 8:30 and we watched some TV and played. We also colored with these kind of bingo-like markers that make dots. He really likes those (Thanks AMSers!) He fussed as usual over the medicines and the mouth care. His ANC was 333 this morning which was good. He had no fevers in the night but did run one this morning. He was awake and playing and watching NASCAR for the first part of the aftertoon and then his nose started bleeding. He was laying down at the time and after a few hours of sporadic dribbling it started to bleed more and then the nurse gave him some tylenol and he promptly threw it up along with lots and lots of blood that had most liekly been draining into his tummy all afternoon. After that he napped and then got some platelets which he needs benedryl for. After he was on the benedryl he got very cranky when he was awoken and we had some nastiness. He stayed asleep off and on until it was actually shift change and time to go home. He hadn't done any of his evening meds or bath but the nurse was going to let him be. I was more than ready to get out of there since I was there by myself all day so Luke could go see Julia.

His afternoon ANC was 368. We are hoping it continues to climb steadily. This fever he is having will probably stick around until his body can get rid of it on its own.

Off ot bed now!

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Luke here...Just wanted to add a quick something fun. This is a quote from the TCH Child Life Specialist, "God he is cute! I know you guys are his parents so you think he is cute, but I'm a trained professional and I'm telling you he is a cutie."

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