Saturday, October 25, 2003

Saturday, October 25, 2003 10:19 AM CDT

Susan here...

Well - our car is working now so that is a relief. It had to be towed to a shop and a new battery put in. We are happy that it was a simple as that.

Nathan's counts were great yesterday. It has been over two weeks since he has had a transfusion and it doesn't seem that he will need one. We found out that Nathan could definately do radiation therapy in Colorado Springs. We will probably head home next week.

We have been looking into antibody therapy for Nathan in New York City. We found out late yesterday afternoon that they will accept Nathan. They would want him there in 3 weeks or so and that is where it gets difficult becuase we need to convince our HMO to pay for it. It is the only place they are doing this study and it is FDA approved but they don't even take our insurance there and so it is going to be difficult with our time frame to get approval. We also need to make a decision about the MIBG scan he is supposed to have next Thursday because he would have to do that scan in New York and we wouldn't want him to repeat it that close together.

Monday morning Nathan's doctor will make some calls for us and he will also try to get together with the surgeons to figure something out about the remaining piece of tumor (which has shrunk but is still there).

This weekend we will just be hanging around. Luke and Julia will most likely go home midweek to get the carpets and ducts cleaned and then Nathan and I would come home next weekend. We'll see if any of this changes...