Welcome to Nathan's Cancer Journey

This blog is a reposting of Nathan's Caringbridge page which we updated throughout his battle with Neuroblastoma.

Nathan was born on June 16, 2000, diagnosed with Stage IV Neuroblastoma on April 1, 2003 and died on July 29, 2007.

I have posted the journal here to make it easier to look up by date and also to be able to easily add pictures to the journal entries.

Some of the pictures go along with the text, but many of the pictures you will see were pictures taken on the same date the journal was added, even if the pictures have nothing to do with the text. In the future I may add additional journal entries to go along with pictures to add more explanation/memories.

I am just getting started posting the years of entries and so this will be incomplete for some time. I hope to eventually also post the guestbook entries by date as a comment on the post.

Sunday, October 5, 2003

Sunday, October 5, 2003 10:06 PM CDT

Luke here...Nathan had a good day today. His counts were great this morning. His ANC was 560 which is awesome. He hasn't ran a fever in over 24 hours now. I think the doctors are really pleased. He is being weened from the morphine now and I don't think he needs it any longer. Tomorrow if he still hasn't had a fever they will pull him off of one of his antibiotics and then probably the morphine. As long as he can keep the fevers away it is possible he could be discharged to the apartment mid-week. Nathan really had a good day. Oral medications and mouth care are still a fight, but he felt good, didn't seem to have much pain, ate a little ice cream, and played a lot and hard. He was unhooked from his pumps for several hours and played hard, mostly on a mat on the floor. He also did some painting and other play. It was great to see him active and enjoying himself. It is also good for his strength as he really mostly layed in bed for over a week. He wore himself out though. He crashed around 5pm and was asleep when we left.

This one really was short and sweet. There is probably more I should have to say, but I'm tired and not thinking well. Maybe Susan will add something or fill in some gaps. I know she is probably going to update some of the pictures once I get done with this journal entry.

Good night.

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Quick Monday morning update...Nathan's ANC is 1300 this morning! Keep you fingers crossed, he may be discharged tomorrow if all goes well taking him off his meds throughout the day. We have a ton of stuff to do to prep for getting him out. We'll fill in the details at the end of the day.

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