Welcome to Nathan's Cancer Journey

This blog is a reposting of Nathan's Caringbridge page which we updated throughout his battle with Neuroblastoma.

Nathan was born on June 16, 2000, diagnosed with Stage IV Neuroblastoma on April 1, 2003 and died on July 29, 2007.

I have posted the journal here to make it easier to look up by date and also to be able to easily add pictures to the journal entries.

Some of the pictures go along with the text, but many of the pictures you will see were pictures taken on the same date the journal was added, even if the pictures have nothing to do with the text. In the future I may add additional journal entries to go along with pictures to add more explanation/memories.

I am just getting started posting the years of entries and so this will be incomplete for some time. I hope to eventually also post the guestbook entries by date as a comment on the post.

Monday, October 6, 2003

Monday, October 6, 2003 9:43 PM CDT

Susan here...

In case you didn't see the mini update on the previous entry Nathan's ANC was 1360 today!!! They expect to release him tomorrow. Luke and I will not assume it will happen until it actually does. He flirted with a fever today but didn't have one. He kept coughing all day and said he had a hangnail in his mouth. This is probably dead skin sloughing off. His lungs sound fine so they don't know why he is coughing. He threw up twice after getting medications aftger waking up. He seems to be swalloing lots of phlem and it upsets his stomach. He felt crummy most of the day and so I just kept waiting for his temperature to get higher but it didn't hit the magic number that they would have considered a fever so he is still slated to get out tomorrow. He did feel better this evening. He doesn't really have much pain except for when he yawns because he opens him mouth big and there are still some mouth sores way back there. He is off the morphine and most antibiotics now.

We are mostly ready to bring him here to Brent's Place. Luke took the car to be cleaned today and did lots of laundry and cleaning today. He is feeling a little sick and so I stayed with Nathan. We will be at Brent's place for at least 3 weeks or so. We will bring Julia up in a few days. We have to figure something out for Ellie's care though (our dog).

We will let you know if he gets out! Keep your fingers crossed for us!

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