Welcome to Nathan's Cancer Journey

This blog is a reposting of Nathan's Caringbridge page which we updated throughout his battle with Neuroblastoma.

Nathan was born on June 16, 2000, diagnosed with Stage IV Neuroblastoma on April 1, 2003 and died on July 29, 2007.

I have posted the journal here to make it easier to look up by date and also to be able to easily add pictures to the journal entries.

Some of the pictures go along with the text, but many of the pictures you will see were pictures taken on the same date the journal was added, even if the pictures have nothing to do with the text. In the future I may add additional journal entries to go along with pictures to add more explanation/memories.

I am just getting started posting the years of entries and so this will be incomplete for some time. I hope to eventually also post the guestbook entries by date as a comment on the post.

Wednesday, October 15, 2003

Wednesday, October 15, 2003 8:53 PM CDT

Luke here...Not too much to say really. Nathan had a good day yesterday. He didn't have to go to clinic yesterday. I was still feeling pretty sick and slept the morning away. Susan, Grandma Kathy, and the kids went for a nice long walk and played at the playground. The rest of the day was uneventful. Nathan had a clinic visit this morning. His counts were good. His hemoglobin had fallen, but not below the threshold for transfusion. The big surprise from our standpoint is that his white counts and ANC held up without support from neupogen and his platelets didn't fall below the transfusion threshold. The doctor is hopeful that his platelets may pull up on their own since his white counts are holding without help. This is a great sign that his marrow is maturing and doing its job. I still expect his platelets to fall, I'm just happy that they are falling slower. We really didn't get any of the big questions about future treatment (see Susan's previous post) answered yet. I doubt we can have all the necessary docs together for a pow-wow until next week. We were in the clinic for awhile today. After the exam he had a long infusion of an IV antibiotic that protects against upper respiratory infection. He held up pretty well and wasn't too cranky. We had a very cranky afternoon as he missed his nap at the clinic. Things got better though when we had a belated family birthday party for Susan. Nathan was sure to insist that we had party hats and a present. It was nice. No clinic visits tomorrow unless we have bleeding problems.

Thanks for checking in.

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