Welcome to Nathan's Cancer Journey

This blog is a reposting of Nathan's Caringbridge page which we updated throughout his battle with Neuroblastoma.

Nathan was born on June 16, 2000, diagnosed with Stage IV Neuroblastoma on April 1, 2003 and died on July 29, 2007.

I have posted the journal here to make it easier to look up by date and also to be able to easily add pictures to the journal entries.

Some of the pictures go along with the text, but many of the pictures you will see were pictures taken on the same date the journal was added, even if the pictures have nothing to do with the text. In the future I may add additional journal entries to go along with pictures to add more explanation/memories.

I am just getting started posting the years of entries and so this will be incomplete for some time. I hope to eventually also post the guestbook entries by date as a comment on the post.

Monday, October 13, 2003

Monday, October 13, 2003 6:29 PM CDT

Susan here...

We have had a good weekend. I brought Julia up on Saturday and they were very happy to see each other. Nathan was having her follow him around saying "come here baby girl!" and actually he says girl kind of like grill so it was pretty funny. They have never slept in a room together but did great. They stayed up quite a while talking and Nathan was showing Julia a light globe thingy he has in his bed. I heard her say to him "Are you comfy Nate? Are you?" It is wonderful to have our family back together and to watch them play.

Grandma Kathy arrived on Sunday and the kids were very happy to see her and have been having lots of fun playing.

Today Nathan and I went to the clinic. Luke is sick with a nasty cold and went to the ER to make sure he doesn't have an ear infection. He has been wearing a mask and gloves when in close contact with Nathan. Nathan's cold seems better so that is good. Somehow I have avoided the cold but have been extremely dizzy for two days for some unknown reason. All in all we are all not well but Nathan seems to be unaffected. Anyway - Nathan's counts were good today and he didn't need platelets. He will probably need them on Wednesday and that will be a five day period between transfusions which is great. I told his doctor we need to schedule a meeting for Luke and I to get many questions answered about what is next for him. One thing that I think we failed to mention on here is that 4 days before we were coming to transplant we were told that his cat scan showed a piece of tumor still there. The surgeons had told us they didn't leave any pieces. Nathan's doctor talked to the surgeon's and they said something about having to leave the piece to save the kidney. Most likely they missed it or something. But we did not have time to figure all that out before transplant but now we want to figure out what happened. The piece is clearly calcified (dead) but we still want to find out what options are for removing it. So we will hopefully have that meeting soon and get some questions answered - one of which is how long we will remain in Denver for the transplant follow-up and also if we may do radiation here instead of Colorado Springs.

So - no doctor appointments until Wednesday! We will update soon and add some new pictures of the reunited siblings.

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